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Posted on: 4/22/2008 3:13:26 AM
LOOKIN4SPECIAL wrote: Hello. While I do not suffer from CP, many members do. As the host of the Chronic Pain Support Group, I'm here to learn more about CP and how it affects people, especially if it causes one pain. If so, I would like learn how those with CP cope with pain (if experienced) as it may help others. I'm an extremely compassionate person. I suffer from pain 24/7, but from a different diagnosis. I actually now feel blessed that I've made it through the initial phase of my pain condition (which was literally unbearable) as it stirred me to want to help others who suffer with chronic pain -- pain caused from any source. Please state how CP affects you and, if you experience pain, how you deal/manage it. It may help another human being who is suffering, may feel lost at times, and not know what to do. Let's all help one another.
Thanks, Denise
Reply: Hey again Denise,
To get further into my story, I have spastic CP on my right leg below the knee. This causes leg length differences because my bones are porportionate to my different muscle masses, which effects my hips and back. This causes me to have scholiosis (sp) as well, which causes additional pain... so its all interconnected.
Other people I know with CP are very limited in their mobility and because of this have certain points of pain in their joints and muscles like I do as well but each story is different.
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Posted on: 4/30/2008 4:47:18 AM
HI Denise i`m Joe I have a mild case of cerebral palsy on right side.For me it depends on the weather with the pain i get in my joins.Thats the main reason i stay in a wrm climate everybody has a different story though.I wish everyone here on this
site the best. 
Joe
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Posted on: 5/3/2008 9:01:36 PM
dreamingeurope wrote: LOOKIN4SPECIAL wrote: Hello. While I do not suffer from CP, many members do. As the host of the Chronic Pain Support Group, I'm here to learn more about CP and how it affects people, especially if it causes one pain. If so, I would like learn how those with CP cope with pain (if experienced) as it may help others. I'm an extremely compassionate person. I suffer from pain 24/7, but from a different diagnosis. I actually now feel blessed that I've made it through the initial phase of my pain condition (which was literally unbearable) as it stirred me to want to help others who suffer with chronic pain -- pain caused from any source. Please state how CP affects you and, if you experience pain, how you deal/manage it. It may help another human being who is suffering, may feel lost at times, and not know what to do. Let's all help one another.
Thanks, Denise
Reply: Hey again Denise,
To get further into my story, I have spastic CP on my right leg below the knee. This causes leg length differences because my bones are porportionate to my different muscle masses, which effects my hips and back. This causes me to have scholiosis (sp) as well, which causes additional pain... so its all interconnected.
Other people I know with CP are very limited in their mobility and because of this have certain points of pain in their joints and muscles like I do as well but each story is different. Hi me Joe Again my CP affects my right side so if i do alot of walking i walk with a limp it knocks my back out very easy and feelat times real bad pain in the back
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Posted on: 8/29/2008 7:08:51 PM
dreamingeurope wrote: LOOKIN4SPECIAL wrote: Hello. While I do not suffer from CP, many members do. As the host of the Chronic Pain Support Group, I'm here to learn more about CP and how it affects people, especially if it causes one pain. If so, I would like learn how those with CP cope with pain (if experienced) as it may help others. I'm an extremely compassionate person. I suffer from pain 24/7, but from a different diagnosis. I actually now feel blessed that I've made it through the initial phase of my pain condition (which was literally unbearable) as it stirred me to want to help others who suffer with chronic pain -- pain caused from any source. Please state how CP affects you and, if you experience pain, how you deal/manage it. It may help another human being who is suffering, may feel lost at times, and not know what to do. Let's all help one another.
Thanks, Denise
Reply: Hey again Denise,
To get further into my story, I have spastic CP on my right leg below the knee. This causes leg length differences because my bones are porportionate to my different muscle masses, which effects my hips and back. This causes me to have scholiosis (sp) as well, which causes additional pain... so its all interconnected.
Other people I know with CP are very limited in their mobility and because of this have certain points of pain in their joints and muscles like I do as well but each story is different.
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Posted on: 8/29/2008 7:20:48 PM
dreamingeurope wrote: LOOKIN4SPECIAL wrote: Hello. While I do not suffer from CP, many members do. As the host of the Chronic Pain Support Group, I'm here to learn more about CP and how it affects people, especially if it causes one pain. If so, I would like learn how those with CP cope with pain (if experienced) as it may help others. I'm an extremely compassionate person. I suffer from pain 24/7, but from a different diagnosis. I actually now feel blessed that I've made it through the initial phase of my pain condition (which was literally unbearable) as it stirred me to want to help others who suffer with chronic pain -- pain caused from any source. Please state how CP affects you and, if you experience pain, how you deal/manage it. It may help another human being who is suffering, may feel lost at times, and not know what to do. Let's all help one another.
Thanks, Denise
Reply: Hey again Denise,
To get further into my story, I have spastic CP on my right leg below the knee. This causes leg length differences because my bones are porportionate to my different muscle masses, which effects my hips and back. This causes me to have scholiosis (sp) as well, which causes additional pain... so its all interconnected.
Other people I know with CP are very limited in their mobility and because of this have certain points of pain in their joints and muscles like I do as well but each story is different.  Hi I'm Supersine here:
I have had like mild CP since birth without much pain throught my 61 years. I do use both manual and powerchair now. This I don't mind as this gives me mobility which the powerchair is a blessing in the kitchen for cooking, etc. The pain that I get in my neck from being on the computer too long otherwise I do OK. About once a year a pain in my back from over doing it on my everyday chores so try to do things slowly in my old age LOL
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